Podcasts/Webinars:

Rare Disease Connection Podcast

Off the F*cking Rails - A Crash Course in Crisis Parenting

The Rare Life: 81 - Health Anxiety

The Rare Life: 85 - Should A Child’s Disability be Part of Their Parent’s Identity? (With author Emily Ladau)

The Rare Life 99 - Family Planning When You Have a Medically Complex Child

The Rare Life 108 - The Holidays + Why They Kinda Suck for Medical/Disability Parents

The Rare Life 109 - Isolating at Home During Holiday Events to Avoid Illness

The Rare Life 110 - When Your Child is Inpatient at the Hospital During Holidays

The Birth Trauma Mama: Disability Parenting After Birth Trauma

Miracle Moon: Navigating Medical Parenthood

The Rare Life 130 - Fearful of Child Loss and Anticipatory Loss

The Rare Life 131 - Chronic Stress + Our Bodies

The Rare Life 132 - The Inaccessibility Of Self Care and How to Define it

The Rare Life 135 - Careers and Family Roles and the Resentment We Feel

The Rare Life 142_ What if My Child Outlives Me

The Rare Life 153: Hurtful Things our Loved Ones Say, and How to Respond

The Rare Life 156: Should I Get a Divorce?

Raising Disabled: Parent Guilt

Conquering Your Clownfish: Preparation, Love, and Self-Care

The Rare Life 159: Managing with Mental Load

We are Brave Together: When You Wish Your Kid Had a Different Diagnosis

Upcoming:

4/22 - Relationships 101 - Marriage & Parenting a Medically Complex Child with DEE-P connections

The Rare Life: Grief

The Rare Life: Aborition